WHAT:
Shine a Light NF Walk is a community event to bring neurofibromatosis out of the shadows. Patients, family, and friends gather to raise awareness, raise money, and recognize the remarkable courage it takes to live with this rare disorder.
Neurofibromatosis, or NF, is a genetic disorder that causes tumors to grow on nerves throughout the body. Affecting 1 in 3,000 people of all populations, there is currently no treatment or cure for NF. We’re walking to raise money to fund critical research that will benefit the 2.5 million people around the world who are affected.
Proceeds benefit the Children’s Tumor Foundation, the leader in the fight against NF.
WHO:
Open to the public – everyone is welcome (registration required): individuals, friends, families, teams, and corporate groups. On-leash dogs are welcome, too!
WHERE:
Crosspoint Church
700 Westgreen Blvd
Katy, TX 77450
WHEN:
Saturday, November 9, 2019
4:30 pm
SCHEDULE:
4:30 pm – Registration/Check-In
6:00 pm – Program and Awards
6:30 pm – Walk
WHY:
Money raised at the Shine a Light NF Walk supports the Children’s Tumor Foundation, a nonprofit organization dedicated to finding effective treatments for the more than two million people worldwide living with neurofibromatosis. For more information, visit www.ctf.org.
REGISTRATION:
Register for the Shine a Light NF Walk in Houston or make a donation at: www.shinealightwalk.org/houston
About Children’s Tumor Foundation
The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.