Texas families united to raise money and awareness for rare genetic disorder
HOUSTON– On March 24, 2018, the Children’s Tumor Foundation will host the annual Houston NF Walk to raise awareness and funds for neurofibromatosis (NF) research. NF is an under-recognized genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in every 3,000 people – more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. It is estimated that more than two million people worldwide are living with NF.
Held at the Mann Eye Institute in Katy, the annual Houston NF Walk unites hundreds of families across Texas who have been touched by NF for a fun-filled day. Throughout the event, the Children’s Tumor Foundation honors “NF Heroes” who have demonstrated remarkable courage living with neurofibromatosis.
“This event is such a great source of hope and happiness for our family,” said Morgan Clayton, NF Mom and NF Walk Houston Organizer. “Receiving the devastating news of our daughter’s NF diagnosis left us feeling helpless and alone, but finding Children’s Tumor Foundation changed our lives. We have now given meaning and purpose to our daughter’s diagnosis.”
During welcome remarks, event organizers will recognize NF Heroes for their positive spirit and resolve to fight NF. Many other NF Heroes will participate at the NF Walk together with teams of families and individuals that have committed to raising money and awareness on their behalf.
WHAT: The Annual Houston NF Walk
WHO: Open to the public – everyone is welcome (registration required): individuals, friends, families, teams, corporate groups.
WHERE: Mann Eye Institute
700 Westgreen Boulevard
Katy, TX 77450
WHEN: March 24, 2018
Check-In Begins 9:00 am
Walk Begins 10:30 am
NF Walk is a national fundraising program of the Children’s Tumor Foundation that supports critical NF research, raises awareness, and provides support for individuals living with NF and their families. An NF Walk affords families, friends, and neighbors the opportunity to connect with others who are affected by NF.
For additional information and registration, visit http://www.ctf.org/events/houston-nf-walk